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Pediatric Craniosynostosis

What is Craniosynostosis?

Craniosynostosis is a condition in which the bones in an infant’s skull grow together too early, causing problems with brain growth and head shape. The edges of the skull bones are called sutures, which normally close by age 2 to 3. With craniosynostosis, the head stops growing in the areas where the sutures have fused, and expands abnormally in other areas.

Craniosynostosis can occur by itself or as a part of certain craniofacial (head and facial) syndromes. If left untreated, craniosynostosis can lead to serious complications, including:

  • Head deformity, possibly severe and permanent
  • Increased pressure on the brain
  • Seizures
  • Developmental delay


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Frequently Asked Questions

What causes craniosynostosis?

What are the types of craniosynostosis?

What are the symptoms of craniosynostosis?

How is craniosynostosis diagnosed?

What are the treatments for craniosynostosis?

What are the life-long considerations for children with craniosynostosis?

Providers Who Treat Craniosynostosis

    Departments that Treat Craniosynostosis

    Rare Disease Institute - Genetics and Metabolism

    Children's National Rare Disease Institute (CNRDI) is a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases.

    Baby crawling around on exam table smiling


    Our neurosurgery experts provide advanced care for newborns and children with complex neurological conditions.

    Plastic and Reconstructive Surgery

    Our team of pediatric plastic surgeons have dedicated their careers to plastic surgery procedures for babies, children and teens.