Meet the Team

Nicholas Ah Mew, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Rare Disease Institute

Seth Ian Berger, MD,PhD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Rare Disease Institute

Kimberly A. Chapman, MD,PhD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Prenatal Pediatrics Institute
• Rare Disease Institute

Jamie Lee Fraser, MD,PhD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Rare Disease Institute
• Leukodystrophy and Myelin Disorders Program
• Prenatal Pediatrics Institute

Christina L. Grant, MD,PhD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital
• Montgomery County

Departments

• Lysosomal Storage Disorders Program
• Rare Disease Institute

Eyby Luz Leon Janampa, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Positive Reevaluation of Urogenital Differences (PROUD) Clinic
• Rare Disease Institute

Amy Feldman Lewanda, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital
• Montgomery County

Departments

• Rare Disease Institute

Debra Sue Regier, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Rare Disease Institute

Kenneth N. Rosenbaum, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital
• Montgomery County

Departments

• Down Syndrome Clinic
• Prenatal Pediatrics Institute
• Neurofibromatosis Institute
• Rare Disease Institute
• Skeletal Dysplasia Clinic

Natasha Elizabeth Shur, MD

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Montgomery County
• Main Hospital
• Northern Virginia

Departments

• Rare Disease Institute

Nina Mickle MS, RD, LD

Locations

• Rare Disease Institute at the Research & Innovation Campus

Languages

• English

Departments

• Rare Disease Institute

Biography

• Nina Mickle earned her Master of Nutrition from Hunter College in 2018. While completing her coursework, Nina developed a passion for metabolism after volunteering at the Mount Sinai metabolism clinic and seeing the impact metabolic dietitians had on their patients. Following graduation, Nina completed her dietetics training at the NIH Clinical Center in 2019, which included a rotation at Children’s National’s Hospital Genetics and Metabolism Clinic. Nina worked as an inpatient clinical dietitian at Children’s National from 2019-2021, with specific focus on patients with complex care needs. Now, her role as a Metabolic Dietitian at CNRIC feels like coming home.

Danielle Starin RD

Locations

• Main Hospital

Languages

• English

Departments

• Rare Disease Institute

Biography

• Danielle Starin, RD, completed her nutrition education at the University of Maryland and her dietetic internship at the National Institutes of Health. She joined the Children’s National Rare Disease Institute in 2016. Her clinical interests focus on metabolic disorders. Her research interests focus on dietary treatment of metabolic disorders and associated outcomes.

Keriann White Kuperman, PA-C,MB,ChB

Locations

• Rare Disease Institute at the Research & Innovation Campus

Departments

• Rare Disease Institute

Allison Ann Shaw, NP

Locations

• Rare Disease Institute at the Research & Innovation Campus
• Main Hospital

Departments

• Rare Disease Institute