Skip to main content
Down Syndrome Clinic

Care of Children with Down Syndrome

Down Syndrome Clinic

Children's National Hospital has the only dedicated Down syndrome clinic in the Washington, D.C., metropolitan area. The clinic is a specialized program coordinated through the Rare Disease Institute.

Our Providers

Our pediatric specialists provide personalized care for your child’s physical, mental and emotional health needs.

Contact Information

For appointments, please call 1-888-884-BEAR (2327) and for information, call 202-476-2187.


Improving Quality of Life for Children and Families

Down syndrome is the most common chromosome disorder in infants. Our multidisciplinary team includes experts in treating children with Down syndrome. We provide comprehensive care and help families manage complex medical and developmental needs. Our family-centered approach enables children to reach their full potential and eases stress on families.

Our Role in Your Child's Care

  • The Genetics Clinic at Children's National works with families beginning with prenatal consultations and evaluations with the Fetal Institute team and can assist in coordination of a birth plan and follow up. 
  • It is recommended that children with Down syndrome be seen in our general Genetics Clinic within the first three months of life.
  • Our team identifies a variety of resources for families, including community programs and local support groups for parents and children.
  • We distribute parent education materials and provide culturally sensitive assistance.
  • Our providers are experts in treating children with Down syndrome and make sure your child has regular screening tests as well as a timeline for their medical care.  
  • We continue to see babies, children and adults who have been diagnosed with Down syndrome over their lifetime. 
  • Our multidisciplinary Down syndrome clinic includes a geneticist and a child development specialist for children under three years old with an established diagnosis of Down syndrome.

The clinic's staff works closely with specialists throughout Children's National and referring pediatricians to achieve:

  • Comprehensive medical assessment
  • Development diagnostic assessment
  • Coordination/monitoring of early intervention services
  • Emergency newborn consultation at area hospitals on request
  • Specialty referrals
  • Research into diagnosis and management for children with Down syndrome

Have specific questions?

Please contact our genetic counselor, Rhonda L. Schonberg, M.S., CGC.

A smiling young girl in wheelchair giving a thumbs up

Give to Save Lifetimes

Change a child's life forever. Donate to help find cures, fuel innovation and provide world-class care for every child.

A smiling young girl in wheelchair giving a thumbs up

Patient Stories

Family Resources

At Children’s National, we understand that families have many questions about their child’s condition and care. In addition to any resources your provider may give you, our online resources can also support your ongoing treatment journey.