Skip to main content
Provider and young boy giving a high five

Comprehensive Sickle Cell Disease Program

Family Resources

Provider and young boy giving a high five

Online Resources


Sickle Cell Adolescent Transition Guidelines

Our Sickle Cell Adolescent Transition Guidelines are designed for teens with sickle cell disease to help them better understand their health condition. Teens will learn how sickle cell is affecting their bodies, how to make the move from a pediatrician to an adult doctor, how to manage pain, learn about sexual health and also ask questions and learn from other teens with sickle cell disease.

    What is Transition?

    Transition means changing or moving from one stage or place to another. Everyone goes through transitions in life — like when you graduated from elementary school. Transition can be exciting, involving new experiences. But transition can also be difficult and scary, especially when you are not prepared for it.

    An important transition in your life will be moving from child to adult-centered healthcare for your sickle cell disease. This transition occurs differently around the country depending on your sickle cell program, but usually involves changing your sickle cell doctor and hospital. Transition also involves other important aspects like:

    • Having a better understanding of sickle cell disease
    • Answering and asking questions at your medical appointments
    • Making your own medical decisions
    • Taking your medicines independently
    • Advocating (speaking up!) for yourself

    With the help of this site, your healthcare team and your family, you can have a successful transition!

    About Transitioning to Adult Care

    When does transition occur?

    Where should I transition?

    Why do I need to transition?

    Becoming an Advocate for Yourself

    What is an advocate?

    Am I ready for transition?

    Frequently Asked Questions

    Are there college scholarships for people with sickle cell anemia?

    How long will I live?

    What famous people have sickle cell anemia?