Family Resources
Your child’s participation helps us to advance our knowledge of and develop new treatment strategies for future patients with rare brain tumors.
Essential Information for Families
To be eligible for the registry, your child must:
- Be diagnosed with one of the following:
- CNS sarcoma
- BCOR altered tumor
- Astroblastoma/MNI-1 altered tumors
- Histologically ambiguous/unclassifiable tumor
- Other rare brain tumor
- Be younger than 45 years old at the time of their diagnosis
Interested in participating in the registry?
If you'd like to have your child participate in the registry, please complete our short survey or email us.