Join Us for a Special Learning Experience
The Gilbert Family Neurofibromatosis Institute at Children’s National hosts an annual NF Family Day. Each year, families affected by neurofibromatosis are invited to a day of educational presentations and discussions hosted by NF clinicians and researchers at Children’s National, in partnership with the Children's Tumor Foundation (CTF).
2027 Neurofibromatosis Family Day
Stay Tuned for Details on Our Next Event
We hope you can plan to join us for the 2027 Family Day. Details will be posted as soon as they become available. If you have questions about the event, please reach out to our team.
Thanks for Coming to Family Day 2026!
Experts discussed relevant topics including:
- NF Neuropsychology Research Update
- Plexiform neurofibromas: State of the science
- Headaches in NF1
- Pain and NF1
- Genetic testing in NF1
Our keynote speaker, Pamela Wolters, PhD, Senior Associate Scientist at the National Cancer Institute, shared the latest research on assessing pain in individuals with neurofibromatosis type 1 (NF1).