Bone Marrow Failure Program
Bone marrow failure describes a group of blood disorders that share a common experience: There is a decrease or an ineffective blood cell production in a person's bone marrow. These disorders may develop before a baby is born (a trait inherited from their parents) or can develop after a baby is born. Some of the complications that children with bone marrow failure disorder may experience include blood transfusions, infection, bleeding or bruising and in some cases, cancer (malignancy).
Children's National Bone Marrow Failure Program cares for infants, children and young adults with these disorders, offering treatments tailored to each child's case. Our team coordinates your child's care with your family and other expert teams at Children's National to provide your child with the best care possible.
Our Providers
Our pediatric specialists provide personalized care for your child’s physical, mental and emotional health needs.
Contact Information
For appointments, please call 1-888-884-BEAR (2327) and for information, call 202-476-8066.
Why Families Choose the Children's National Bone Marrow Failure Program
Children’s National recognizes that bone marrow failure disorders are rare and complex. Therefore, your child will be cared for by a dedicated team with specialized expertise in these conditions. We offer a comprehensive diagnostic evaluation, including genetic testing when appropriate. Furthermore, your child will receive care coordinated with other specialists at Children's National, including mental health support from child life specialists, child psychology and a social worker. Our center also provides a combined Bone Marrow Failure and Bone Marrow Transplant multidisciplinary clinic to manage your child's healthcare needs together when you have appointments with us.
Learn More About Our Program
We treat acquired and inherited bone marrow failure disorders including:
- Acquired aplastic anemia
- Congenital amegakaryocytic thrombocytopenia (CAMT)
- Diamond Blackfan Anemia (DBA)
- Fanconi anemia
- Telomere Biology Disorder
- Severe congenital neutropenia
- Cyclic neutropenia
- Shwachman-Diamond Syndrome (SDS)
- Thrombocytopenia absent radii syndrome (TAR)
Family Resources
Patients and their families can learn more from a glossary of terms, and find additional support for bone marrow failure from the websites of organizations dedicated to related conditions.
Provider Resources
We’re here to help your patients get the care they need. Referring providers seeking patient appointments, second opinions, or additional information can contact us directly via email.
Advice From Our Experts
Want advice on raising healthy, happy kids? The experts at Children's National are here for you! Get reliable advice from trusted doctors on the Rise and Shine blog. We're sharing our knowledge on everything from children's health to practical parenting tips.
Location
Main Hospital
- Specialty Care
- Emergency Care