Johan's Story

Johan’s older sister, Joanna, was his “love” donor. His older brother, Thomas, was his “supercell” donor, donating bone marrow to save Johan’s life. In the three decades since his uncle died from the same rare disease, immunotherapy has revolutionized how such dread diseases are conquered. Read Johan's story.

Enhancing Johan's Life

Johan was born with chronic granulomatous disease, a rare disorder that saps the immune system’s ability to fend off life-threatening infections. After a life-saving donation, he now has a working immune system and can explore the big outdoors.

View Johan's journey