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Children's National News: Highlights
New Website URL
Children's Launches Neurofibromatosis Institute
Children's Brain Tumor Institute
Children's Annual Report
New Web Site URL
Children’s National launched the newly designed www.childrensnational.org. Please note Children’s new URL and update your address books.
The new site has many features, including:
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Children’s Launches Neurofibromatosis Institute
Children’s new Daniel and Jennifer Gilbert Neurofibromatosis Institute, one of the largest collaborations focused on neurofibromatosis in the world, specializes in the diagnosis, evaluation, and treatment of children and adults with the full range of conditions that relate to this disorder.
Led by Children’s neurologist, Roger Packer, MD, Children’s Neurofibromatosis Institute is designated a Neurofibromatosis Center of Excellence by the National Neurofibromatosis Foundation. The Institute offers a multispecialty clinic with one central location for patients and families to meet with specialists in genetics, neurology, and ophthalmology. From that clinic, patients and families are referred as needed to specialists in oncology, neurosurgery, neuropsychology, and otolaryngology.
Children’s Neurofibromatosis Institute was chosen as one of eight programs in the United States to participate in the Neurofibromatosis Clinical Trials Consortium and Dr. Packer is group chair of the consortium. The Institute also participates in developing new therapeutic treatments for the neurocognitive aspects of neurofibromatosis, and assesses the agent, lovastatin, for children with neurofibromatosis and learning disabilities.
The Institute provides extensive support for families and children, including the coordination of the largest neurofibromatosis camp on the East Coast for children between the ages of 7 and 16.
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Children’s Brain Tumor Institute
Children’s new Brain Tumor Institute is a multidisciplinary, internationally renowned collaboration that evaluates one out of every 10 children in the United States diagnosed with a brain tumor.
Children’s unique collaboration between the Divisions of Oncology and Neurology means that patients see an oncologist and a neurologist at every visit. In addition, the program includes neurosurgeons, neuropsychologists, radiologists, psychologists, endocrinologists, and pathologists.
As one of the most active clinical research programs in the country, the Institute delivers the most innovative and best therapies possible, including those which delay, and at times eliminate, radiotherapy for infants and children; biologicbased translational therapies; and high-dose chemotherapy with stem cell therapy support. Additionally Children’s brain tumor laboratories study the neurology of the tumor and evaluate the long-term effect of the tumor or its treatment on outcomes.
Children’s patients have access to leading edge treatments through Children’s Oncology Group’s Phase I trials, Pediatric Brain Tumor Consortium Protocols, the National Cancer Institutes, and Neurofibromatosis Clinical Trials Consortium Protocols.
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Children's Annual Report:
Transforming Children's Health One Child at a Time
At Children’s National Medical Center, our team of pediatric experts is dedicated to transforming children’s health, not only in our region, but in the nation and throughout the world. Our team addresses the needs of each child on an individual basis. What we do through our mission of CARE—world-class care, advocacy, research, and education—extends far beyond the walls of our hospital. In addition to treating patients, our clinicians are in the lab developing innovative treatments, or testifying on the Hill, or teaching the next generation of pediatric specialists.
We invite you to read about the transformations occurring everyday at Children’s National, and we hope to inspire you to join us as we improve the lives of children, one child at a time.
Request a copy of Children’s Annual Report.
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