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Sickle Cell Disease Program



Sickle Cell Transition Education Project (STEP)
This site is for teens with sickle cell disease. It will help you better understand your health condition as you STEP up! in life
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The Sickle Cell Disease Program at Children’s National Medical Center is among the largest pediatric sickle cell disease programs in the country. Each year we treat more than 1,400 children and young adults, from birth to age 21, with all types of sickle cell diseases.

Innovative Comprehensive Care
We have helped thousands of patients, but never consider the care we provide routine. Our comprehensive care team works together to develop an individual care plan for every patient.

The program addresses all aspects of a child’s clinical needs. All of the necessary specialists are in one location:
• Doctors
• Nurse practitioners
• Nurses
• Physician assistants
• Psychologists
• Social workers
Through blood transfusions and the latest drug therapies, Children’s specialists lessen the effects of the disease, and have even cured the disease through hematopoietic stem cell transplantation (HSCT).

Comprehensive care also means support for families to help them cope with a child’s illness, including a dedicated stress management team. As part of the Center for Cancer and Blood Disorders, patients, parents, and siblings have access to comprehensive mental health and psychosocial services and other helpful resources through the Patient and Family Support Program.

Research to Improve Patient Outcomes
Our team members are leading experts in the field and pioneers in research to prevent, treat, and reverse the damaging effects of sickle cell disease.

Children’s Division of Hematology is dedicated to finding new and more effective therapies by participating in clinical trials sponsored by the National Institutes of Health, and supporting the advocacy efforts of Children’s Child Health Advocacy Institute (CHAI).

To learn more about enrolling your child in a research study or clinical trial, speak with your child’s doctor, nurse, or other care team members.


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2010 Stomp Out Sickle Cell Walk

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2010 Stomp Out Sickle Cell Walk

In honor of National Sickle Cell Awareness month, Children's employees joined together for the 2010 Stomp Out Sickle Cell Walk. This year, 796 participants joined the walk which is triple the number from last year!
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Sickle Cell Trait and Sickle Cell Disease - New Developments


Description: The prevalence and developments in sickle cell disease, including ethnic diversity and cure by transplantation. Discussed by Lewis Hsu, MD
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Fox5 highlights Children's sickle cell program, that helps kids living with sickle cell disease keep up with their treatment. June 16, 2010

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