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Sickle Cell Disease Program



Sickle Cell Transition Education Project (STEP)
This site is for teens with sickle cell disease. It will help you better understand your health condition as you STEP up! in life
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The Sickle Cell Disease Program at Children’s National Medical Center is among the largest pediatric sickle cell disease programs in the country. Each year we treat more than 1,400 children and young adults, from birth to age 21, with all types of sickle cell diseases.

Innovative Comprehensive Care
We have helped thousands of patients, but never consider the care we provide routine. Our comprehensive care team works together to develop an individual care plan for every patient.

The program addresses all aspects of a child’s clinical needs. All of the necessary specialists are in one location:
• Doctors
• Nurse practitioners
• Nurses
• Physician assistants
• Psychologists
• Social workers
Through blood transfusions and the latest drug therapies, Children’s specialists lessen the effects of the disease, and have even cured the disease through our Sickle Cell Transplant Program.

Comprehensive care also means support for families to help them cope with a child’s illness, including a dedicated stress management team. As part of the Center for Cancer and Blood Disorders, patients, parents, and siblings have access to comprehensive mental health and psychosocial services and other helpful resources through the Patient and Family Support Program.

Each year, 80 newly diagnosed infants with sickle cell disease are seen annually in our comprehensive Infant Sickle Cell Program. Our Infant Sickle Cell Program team of physicians, nurse practitioners, social workers, genetic counselors and development specialists provides education about the diagnosis, supportive care, and treatment options to families.

Research to Improve Patient Outcomes
Our team members are leading experts in the field and pioneers in research to prevent, treat, and reverse the damaging effects of sickle cell disease.

Children’s Division of Hematology is dedicated to finding new and more effective therapies by participating in clinical trials sponsored by the National Institutes of Health, and supporting the advocacy efforts of Children’s Child Health Advocacy Institute (CHAI).

To learn more about enrolling your child in a research study or clinical trial, speak with your child’s doctor, nurse, or other care team members.


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Annual Symposium

Research Updates for Patients Living with Sickle Cell Disease and Their Families
When: Saturday, November 2, 2013 9:30 am - 3:00pm(registration opens at 9:00)
Where: Main Auditorium - 2nd floor
Children's National Medical Center
111 Michigan Ave, NW
Washington, DC 20010

Registration: Please register here by October 18, 2013

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News and Videos

Overview of Blood and Marrow Transplantation | Children's National Health System


Description: Patients' and parents' stories about blood and bone marrow transplantation for sickle cell disease, care they received at Children's National Health System.

Blood, bone marrow transplant for sickle cell disease | Children's National Health System


Description: Children's National Health System specialist Allistair Abraham, MD, explains blood and marrow transplantation for sickle cell disease patients.


Children's Patient Meets Bone Marrow Donor, Helped Cure Disease October 14, 2013

Fox5 highlights Children's sickle cell program, that helps kids living with sickle cell disease keep up with their treatment. June 16, 2010

Resources

- Departments & Programs - Children's National Medical Center