Cystic Fibrosis Center (Pediatric and Adult)
Children’s Cystic Fibrosis (CF) Center offers a multidisciplinary team of specialists who see to all aspects of care for inpatients and outpatients of all ages with CF.
The center is a Level III CF center, and a Cystic Fibrosis Foundation designated care center, the only one in the immediate Washington, DC area. CF care centers are part of a nationwide network of CF providers who meet the highest standards in expert clinical care and support for CF patients and their families.
To meet the needs of our CF patients, we offer two programs – a Pediatric CF Program and an Adult CF program – both accredited by the Cystic Fibrosis Foundation (CFF).
The Cystic Fibrosis Care Team
Children’s specialists provide patients with the most advanced care and help families learn about home management of CF. The team includes pediatric and adult pulmonary physicians experienced in the management of patients with CF and related specialists in CF:
Each year, the center sponsors a formal CF Family Education Day that includes lectures and hands-on teaching sessions on a variety of topics related to CF care, research, and psychosocial issues.
• CF nurse specialists
• Family nurse practitioner
• Physical therapist
• Pulmonary function technicians
• Respiratory therapists
• Social worker
Center staff is also active in several CF advocacy groups and projects sponsored by the Cystic Fibrosis Foundation, including the Great Strides walk-a-thon for CF research.
A Seamless Transition for Patients
Approximately 100 children are enrolled in the Pediatric CF Program directed by Division Chief Anastassios Koumbourlis, MD, and coordinated by Beth Harkness, RN, CPN.
Pediatric CF patients generally begin to prepare for transition to the adult program between 16 to18 years of age. The Pediatric and Adult CF Nurse Coordinators work closely with patients, families, providers, and other team members to ensure a smooth transition.
The Adult CF Program currently follows more than 60 patients. The program is directed by Peter Levit, MD, and coordinated by Dana Bridges, CFNP.
Research to Improve Patient Outcomes
In addition to the center’s basic clinical and basic science research programs, as a designated CF care center, Children’s National participates in the CF Foundation's Patient Registry. The registry gathers data to help identify and evaluate health care issues affecting CF patients. Researchers use the information to advance treatments and improve quality of life for CF patients and families.
Because most of our patients choose to participate in the registry, we are able to track data on certain clinical variables such as weight, pulmonary function, nutritional status, and infection to increase the overall understanding of CF and improve care.
To learn more about our current research activities and clinical trials, speak with a member of your child’s care team or center staff.
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- Departments & Programs - Children's National Medical Center